Thorax 1999;54:1140
( December )
Letters to the editor
 | Rare diseases |
 | Reply to letter |
Rare diseases
| The first 150 words of the full text of this article appear below. |
We welcome the series of articles on rare pulmonary
disorders which started in the March 1999 issue of
Thorax. In the introduction to the series
Tattersfield and Du Bois1 describe the frustrations felt
by patients unable to obtain information about their rare pulmonary
condition from clinicians with little or no experience of that
disorder. The isolation of such patients is emphasised when they are
unable to share their experiences with others diagnosed with the same
disorder. Whilst we appreciate that this is true for many patients, we
would draw attention to the massive range of information on rare
pulmonary disorders available to both patients and doctors via the
Internet. There are over three million UK subscribers to the Internet
currently and, with the advent of digital television, this number will
rise exponentially over the next few years. The problem then facing the
patient (and clinician) is too much information. For . . . [Full text of this article]